Tagged with City of Hope

Tummy Sticks

I’ve been going along, living each day, thanks to my amazing brother, family and friends.  Back in the saddle of life kinda thing.  I was literally just thinking that I was getting into a rut, even taking my miracle life for granted. – Enter Saturday morning – My face was puffier, more inflamed and fuglier … Continue reading

Guest Blogger – My Lifesaving Donor Son, Rex

You must be sooooo sick of me blah blah blah-ing all the time, so I thought you would greatly appreciate (I know, right?  She never shuts up) hearing from someone else who has had experience with the transplant world.  It’s about time for some new blood! Rex writes from the perspective of a stem cell donor. … Continue reading

Walking Across Amarrowca

You may remember from a previous post that my good friend, Jared Reichbaum, is making a documentary film inspired by my story and based on his amazing adventures. Well, he has just embarked on a truly remarkable adventure. Truly. Remarkable. So I’ll remark about it. Jared is walking across the United States of America. That’s … Continue reading

YOLT

Wow!  I feel like a big loser poopy head for not writing my 60th post sooner.   I strongly dislike excuses, so I won’t give you one.  I’ll give you 3.  It’s exceedingly difficult to write when you’re:  1.  90 feet underwater 2:   flying towards earth at 120 mph and 3:  clinging to an ice wall … Continue reading

From Hair to There

Queue Rod Serling:  You are about to enter another dimension.  A dimension not only of time and space, but of hair.  A journey into a wondrous land of strands.  You’ve just crossed over into… the Baldilocks Zone.  My apologies to those of you born after about 1970, for you are now wondering where the f you can … Continue reading

Transitioning Back to “Normal”

I’m feeling more and more like my prick (pre + sick) self lately, and my last visit to City of Hope’s Main Lab waiting room confirmed it.  Putting my new vision to use, I surveyed my fellow patients, all there for AFBT – Another F-ing Blood Test, and I realized I was the ONLY one without … Continue reading

On Second Thought

SECOND CHANCE I’ve been thinking a lot lately about how lucky and blessed I am to have a second chance at life.  A do-over.  If I had been born a few decades earlier (before bone marrow transplants), I wouldn’t have seen my 50th birthday.  If my brother, Leason, had not been a match, I may … Continue reading

The Eyes Have It

 Have you ever tried to see through Vaseline?  I have 🙂  My eyes have been taken hostage by Graft vs. Host Disease and in addition to that, TDVPHCCIBP – The Dreaded ‘Vitamin P’ (Prednisone) Has Caused Cataracts In Both Peepers.  My newest team member, Dr. S3 diagnosed me with multiple cataracts and told me that I … Continue reading