Tagged with bone marrow

O N E T H O U S A N D D A Y S

My amazing friend and super supporter, Jared Reichbaum of Walking Across Amarrowca and epic beard-growing fame, is already in Colorado, quickly making his way to California!  Simply stupendous in every way!  His goal is to arrive in time to complete the last official leg of his incredible 7-month journey at the Be The Match Walk+Run in … Continue reading

Walking Across Amarrowca

You may remember from a previous post that my good friend, Jared Reichbaum, is making a documentary film inspired by my story and based on his amazing adventures. Well, he has just embarked on a truly remarkable adventure. Truly. Remarkable. So I’ll remark about it. Jared is walking across the United States of America. That’s … Continue reading

Who Gives a Flying F*@k?

Who gives a flying f*@k?  I’ll tell you who gives a flying f*@k:  Marvin Drandell gives a flying f*@k, that’s who!  Marvin, Todd’s best buddy from grade school had a flying f*@k sent to me, and I couldn’t be more ecstatic with his kind and thoughtful gesture 🙂  Don’t you want someone to give a … Continue reading

Footballs, Feasts and the Big Five-Oh

Dear Readers, I am writing to you today from a somewhat inverted position.  I am lying on the floor with my feet above my heart.  Due to several of my meds’ side effects, my feet have been blowing up beyond recognition and have become very painful to walk on, let alone fit into any shoes … Continue reading

Hairdo You Do?

At yesterday’s visit to City of Hope, Dr. F decided that I need to have blood drawn and meet with him only once a week, compared to twice a week ever since I was released from the hospital.  Yay!  Yay!  Yay!  We were so stoked to hear this new schedule, because recently my blood counts … Continue reading

Transfusion Fun 101

Before I ever had a transfusion, I thought of them as scary, critical and dangerous.  I never EVER thought I would need one.  At this point, I’ve had 14 of them, and I now equate a transfusion to a chill sesh – relaxing in a lounge chair, reading, watching TV or a movie, and visiting … Continue reading