Blood, Sweat and Tears for Nothing

After surviving my inner lids being stabbed by 150 needles, I was beyond stoked to be rewarded with “normal” eyes, something that’s eluded me for years.   Finally!  I can apply a little Mac, Laura Mercier and Lancôme.  Ya, that didn’t last.  Intraductal meibomian gland probing was an utter quagmeyere.  A big fat f-ing fail.  After a couple of glorious, tear-free weeks, my eyeballs backpedaled into Sucksville.

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Eye’m sorry for the heinousness

Time for a second sixth opinion.  Apart from my new doc’s last name comprised of the first four letters of a funny (to a third grader) word that kept causing me to giggle during my exam, I thought he was really inspiring.  He thought I was like really immature.  His recommendations have worked magic so far and he has a long list of additional possible remedies if it all goes to hell.  One of these alternatives is using my own stem cells to make abracadabra voodoo eye drops!

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Three generations of Mouseketeers

My fourth transplanniversary was celebrated as usual with my family at Disneyland.  Our three generations had a great time zigging and zagging our way through Fantasyland, Adventureland, and of course, Tomarrowland!  My sucky eyes are always peeled for Leason’s and my mascots, the Tweedle twins ~ they must be shy.  Or maybe Dee and Dum want nothing to do with a crazed bone marrow transplantee seeking awkward hugs and selfies.

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My purple hair is fading, but my love for my bronor will never fade!

To further the celebration, Leason and I met up for lunch in our family’s hometown of Old Towne Orange, CA with our parents.  Pomeroy family rule #31.7:  never turn down an opportunity to partay.

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Hope’s trees

My trips to City of Hope are always a time of reflection and appreciation for all of the fantastic peeps who saved me and continue to keep me well. The wish trees at the entrance are a powerful reminder that I am a very lucky girl.

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Making the clay my bitch

Lucky for many reasons, including the chance to cross sh*t off my Buttkick List. Recent checkoffs include √throwing a pot on the wheel under the expert tutelage of my friend and super supporter, Mary.  Despite splattering clay all over her studio, I loved the feel of the smooth, wet clay in my hands.  Oh, and the photo of Ryan Gosling.

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Whose calves are those?  #nofilter

I enjoyed √cliff jumping  on Siargao Island in the Philippines, too.  After swimming into a dark limestone cave, then climbing about 30 feet of stalagmites, our group exited a cranny (first time I’ve ever used that fun word!) in the stone wall and jumped into the river below.

IMG_1023I am just beginning to √learn the game of golf, enduring enjoying a lesson and a quick round.  Despite almost taking out a greenskeeper with my unintended fade and the sweat-drenched clubs barely adhering to my problematic grip, it was tolerable fun.  I have a long way to go with my pathetic golf game.  I just hope I have a long way to go.

 

 

 

 

 

 

34 thoughts on “Blood, Sweat and Tears for Nothing

  1. Hi Jos…You are going to write a book, right? You write so well… and humor is always present…Hope the next treatment clears your eyes up for good…xxoo Auntie Caryll >

  2. I hate to say it Jos, but you look better in shades. Cool that you are throwing a pot! That picture brought back memories of many hours spent on the wheel – very fun times with uncle Jon and me at ASU using up all the clay in the ceramics department for our commercial ventures. Seriously, I hope you can reach some kind of normality with your eyes. They look painful. So sorry to see you are still having problems with them.

    • I was thinking of you and Uncle Jon when I was sitting there, cursing at the non-cooperative clay. Not because of the cursing, but because of all the far out ceramics you guys produced. I love the brilliant idea of having ASU fund your commercial ventures! Thanks for the love and support! Right back at ya! XO

  3. Jeez Jos! So sorry to hear about your latest ass kicker!! The humor you pull out from who knows where, never ceases to amaze!! You’ll get through this, just like you have everything else, that has been unfairly hurled your way. Sending you love and good vibes that hopefully this nightmare of yours will end once and for all. xoxo Duke & Katie

  4. As I’ve said before u are amazing and I love your blogs. Such a great sense of humor with all you’re going through. Love, Sharon

  5. Hi Jos. Sorry the eyes don’t have it yet.
    So we look to a more successful tomarrow for that piece. Trooper Jos will see to that.!!💪
    Gotta love the buttkick list!!
    Love the pot. Demi Moore could do no better. That sucker is “checked off”.
    Seeing you on the links is a beautiful a beautiful thing. Hang in there. Check it off!!
    NOW TO CLIFF DIVING AND THE PIC OF RYAN GOSLING!
    What chu talkin’ about there Willis?
    Is the pic of Ryan or at least his calves?
    Or is it you in a very masculine diving outfit ?
    So do we check off the cliff diving or the pic of Ryan on the butt kick list ?
    I’m keeping tabs and need to know!!
    Love and keep the blogs coming.
    Happy 4th, and at the 5th celebration, met success and buttkicing!!❤

    • Bart! I SO appreciate your attention to detail and inquisitiveness :). Ryan keeps an eye over the ceramics studio from his photo on the wall. I’m sure his calves are much prettier than mine. Love the Demi line :). That is me cliff jumping in a one piece/board shorts ensemble – my uniform whenever I go cliff jumping, just in case I have a bathing suit malfunction :). Thanks for being you! XO

  6. Always enjoy your updates. Sorry to hear your tear duct problem is back. Sucks!
    Throwing pots!!!… now that’s cool!

  7. Thanks for the update Jos. Love your bucket list❤ That is a great Family pic at Disney. I though Andi was Kesha(sp?) Stay well and sassy forever!

    • Thanks, Cheryll! We had a great time being sassy at the Magic Kingdom :). I know, Andie is looking a lot like Kesha and now she’s taller than her mom! Love to you and John! XO

  8. Joselyn,

    I have a feeling you not only have a long way to go, you’ll have lived several lifetimes over the rest of us simple mortals.

    You are so inspiring and the story of your continual journey brings a smile to my heart. Thanks for sharing!!

    xoxo

    LInda Mason

    ________________________________

  9. Those green/red eyes reminds me of some of Emilie”s adventures. You just seem to keep on ticking. At a girl–you’ll make it. Love you, Bob

    On Sun, Mar 26, 2017 at 1:11 PM, Joselyn’s Brawl with Shulman’s Syndrome & Aplastic Anemia wrote:

    > joselynmiller posted: “After surviving my inner lids being stabbed by 150 > needles, I was beyond stoked to be rewarded with “normal” eyes, something > that’s eluded me for years. Finally! I can apply a little Mac, Laura > Mercier and Lancôme. Ya, that didn’t last. Intraductal m” >

  10. Through your challenges you have not been conformed to this world, but are transforming lives to live beyond this world and see that there is always joy and adventures to reach out and grab. Thanks, Jos!! Love you.
    Marilyn

  11. You never cease to amaze me and I love your humor, wit and most of all you! So glad to call you my friend!
    Xoxo, Jae …your friend forever in crime and I do mean forever and ever

  12. Jos, you are such an inspiration. Can’t wait for your book. Keep up the good work.
    Love, Bonnie

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