Posted in September 2012

Pop Quiz

We’ve received some good news 🙂  The pneumonia infection in my lung has gotten smaller, according to a follow-up X-ray.  It appears to be fungal, not bacterial, which makes it more difficult to off, but I’m being pumped with endless IV antibiotics and anti-fungals round the clock.  I will have a follow up CT scan … Continue reading

Hold Your Ho Ho Horses

Christmas came early for me this year!  I must have been a very good girl, because I got the best toy of all – a PICC line!  I know you’re all jealous as hell.  This device allows me to avoid the countless pokes my condition brings with it.  It’s a long-term port that has 2 … Continue reading

Game On – Equine Style

We finally heard from Dr. P with my latest bone marrow biopsy results.  It was not good news.  I have severe Aplastic Anemia, which means my bone marrow has failed.  Once again, I’ve been given a rare diagnosis, with approximately 2 to 3 Americans in every 1,000,000 having received it.  WHAT??? I was always told … Continue reading

Bad Ass or Blows?

My Over-The-Top Loving Family – BAD ASS in the most awe-inspiring way Having 12 Doctors Working to Heal Me – BAD ASS in the most stellar way Waking Up to the Joys of the Newest Prednisone Side Effect:  Mouth Ulcers Covering the Inside of My Cheeks – BLOWS in the most f-ed up, merciless way … Continue reading

Marrow, Moon Walking and Mid-day Mexi Magic

Wednesday I went to Dr. G’s (neurologist) office for another MRI to check the inflammation of my muscle fascia.  Literally 2 seconds after getting dressed, I was called back in for a second 45-minute session in the tube, this time with dye.  UGG!  I mean FUGG! The results showed that the inflammation that was huge … Continue reading

Fevered Trifecta

After a relaxo Sunday, I woke up on Labor Day Monday with the chills – exactly what my new doc, Dr. P, of City of Hope told us was the worst possible thing for me at this time.  We headed to the Hoag Cancer Center for AFBT (Another F-ing Blood Test) and possible transfusions early … Continue reading

Hope

HOPE – (Have Only Positive Expectations) Friday was the best day in a long time.  We drove up to City of Hope in Duarte, where my Newport team of docs decided I need to be at this point.  Didn’t really know where the hell Duarte was previously, but we now have the route memorized and … Continue reading